Abstract:
Background: Usually manifesting in early childhood, autism spectrum disorder (ASD) is a neurodevelopmental disorder that impacts social communication and behavior. Objectives: The present study aims to contribute to raising awareness about autism spectrum disorder (ASD) through my research on assessing parents’ knowledge and awareness of its symptoms and management strategies. Methods: A cross-sectional study was conducted on a sample of 100 parents (both fathers and mothers) of children with autism spectrum disorder (ASD) to assess their knowledge of ASD symptoms, management strategies, and awareness levels. The sample was collected from the My Family Center for Autism in Basrah city. The questionnaire was distributed to the parents and collected approximately one week later. The collected data were then analyzed statistically, yielding the following results. Results: It was found that 80% of the parents had a moderate to good level of knowledge regarding ASD management strategies, while 20% had poor knowledge. For ASD symptoms, 75% showed moderate to good awareness, and 25% had poor understanding. The ratio of correct to incorrect answers per parent was approximately 3:1 for both parts of the questionnaire. Conclusion: Most parents demonstrated acceptable knowledge about ASD management strategies, and also most showed sufficient awareness of its symptoms. However, the remaining parents with lower knowledge levels require targeted educational programs to improve their understanding and support for children with autism spectrum disorder.
Highlights:
High parental awareness of ASD symptoms and management was observed.
75–80% of parents had moderate to good knowledge levels.
Educational programs are needed for parents with low ASD awareness.
Keywords: Knowledge, Awareness, Parents, Children, Autism Spectrum Disorder
References
T. Hirota and B. H. King, "Autism Spectrum Disorder: A Review," JAMA, vol. 329, no. 2, pp. 157–168, 2023.
T. K. Grønborg, D. E. Schendel, and E. T. Parner, "Recurrence of Autism Spectrum Disorders in Full- and Half-Siblings and Trends Over Time: A Population-Based Cohort Study," JAMA Pediatrics, vol. 167, no. 10, pp. 947–953, 2013.
C. V. Tyler, S. C. Schramm, M. Karafa, A. S. Tang, A. K. Jain, and L. Abbeduto, "Chronic Disease Risks in Young Adults With Autism Spectrum Disorder: Forewarned is Forearmed," American Journal on Intellectual and Developmental Disabilities, vol. 116, no. 5, pp. 371–380, 2011.
M. Solmi, M. Song, D. K. Yon, S. W. Lee, E. Fombonne, M. S. Kim, et al., "Incidence, Prevalence, and Global Burden of Autism Spectrum Disorder From 1990 to 2019 Across 204 Countries," Molecular Psychiatry, vol. 27, no. 10, pp. 4172–4180, 2022.
Q. Xie, N. Pan, X. Ou, S. Shen, J. Jing, X. Weng, et al., "Chronic Physical Pain in Children With and Without Autism Spectrum Disorder in the United States: Findings From the 2016–2021 National Survey of Children’s Health," Journal of Autism and Developmental Disorders, pp. 1–15, 2025.
C. M. Conner, A.-L. Pflaum, and S. W. White, "Autism Spectrum Disorder," in Psychopathology, London, U.K.: Routledge, pp. 195–212, 2024.
Centers for Disease Control and Prevention (CDC), "Prevalence of Autism Spectrum Disorders – Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2002," Morbidity and Mortality Weekly Report. Surveillance Summaries, vol. 56, no. 1, pp. 12–28, 2007.
R. Silver, S. Das, M. Lowe, and S. Roberts, "Metabolic Adaptations to Weight Loss: Relative Changes in Resting Metabolic Rate and Energy Expenditure for Physical Activity and Association With Weight Loss Maintenance," Current Developments in Nutrition, vol. 5, p. 526, 2021.
Autism Speaks, "About Us," Autism Speaks, Jun. 11, 2012. [Online]. Available: https://www.autismspeaks.org/about-us
S. L. Hyman, S. E. Levy, S. M. Myers, D. Z. Kuo, S. Apkon, L. F. Davidson, et al., "Identification, Evaluation, and Management of Children With Autism Spectrum Disorder," Pediatrics, vol. 145, no. 1, 2020.
H. R. Cowan and V. A. Mittal, "Transdiagnostic Dimensions of Psychiatric Comorbidity in Individuals at Clinical High Risk for Psychosis: A Preliminary Study Informed by HiTOP," Frontiers in Psychiatry, vol. 11, p. 614710, 2021.
J. M. Lucyshyn, L. K. Irvin, E. R. Blumberg, R. Laverty, R. H. Horner, and J. R. Sprague, "Validating the Construct of Coercion in Family Routines: Expanding the Unit of Analysis in Behavioral Assessment With Families of Children With Developmental Disabilities," Research and Practice for Persons With Severe Disabilities, vol. 29, no. 2, pp. 104–121, 2004.
R. M. Foxx, "Applied Behavior Analysis Treatment of Autism: The State of the Art," Child and Adolescent Psychiatric Clinics of North America, vol. 17, no. 4, pp. 821–834, 2008.
A. Long, "Autism Resources in Rural America," [Online]. Available: https://www.autismruralresources.org. 2023.
S. Matsuo, A. Chaung, D. Liou, P. Wang, and W.-L. Yang, "Inhibition of Ubiquitin-Activating Enzyme Protects Against Organ Injury After Intestinal Ischemia-Reperfusion," American Journal of Physiology - Gastrointestinal and Liver Physiology, vol. 315, no. 2, pp. G283–G292, 2018.
Y. Yang, E. Ro, T.-J. Lee, B.-C. An, K.-P. Hong, H.-J. Yun, et al., "The Multi-Sites Trial on the Effects of Therapeutic Gardening on Mental Health and Well-Being," International Journal of Environmental Research and Public Health, vol. 19, no. 13, p. 8046, 2022.
C. Chi, K. E. Taylor, H. Quach, D. Quach, L. A. Criswell, and L. F. Barcellos, "Hypomethylation Mediates Genetic Association With the Major Histocompatibility Complex Genes in Sjögren’s Syndrome," PLoS One, vol. 16, no. 4, p. e0248429, 2021.
B. Lachmann, R. Sariyska, C. Kannen, A. Cooper, and C. Montag, "Life Satisfaction and Problematic Internet Use: Evidence for Gender Specific Effects," Psychiatry Research, vol. 238, pp. 363–367, 2016.
M. Mahler and C. Auza, "Variation in Antinuclear Antibody Detection: Need for Clear Expectations and Additional Studies," Annals of the Rheumatic Diseases, vol. 78, no. 10, p. e118, 2019.
J. Xi, L. Huo, Y. Wu, M. J. Cobb, J. H. Hwang, and X. Li, "High-Resolution OCT Balloon Imaging Catheter With Astigmatism Correction," Optics Letters, vol. 34, no. 13, pp. 1943–1945, 2009.
P. Bean, Intense, Internal World: A Group for Late-Diagnosed Adult Autistic Women of Color. California State University, Northridge, 2024. [Thesis].
A. N. Ehsan, C. A. Wu, A. Minasian, T. Singh, M. Bass, L. Pace, et al., "Financial Toxicity Among Patients With Breast Cancer Worldwide: A Systematic Review and Meta-Analysis," JAMA Network Open, vol. 6, no. 2, p. e2255388, 2023.